12 July 2011
I got transferred from Westmead Hospital to Braeside Hospital. I will not make another entry until I get out.
Tuesday, July 12, 2011
Monday, May 23, 2011
Hiatus
I'll be taking a break from blogging until my birthday (15.6.2011). Until then thanks for reading
Edit:I'm taking a break until a week after I get out of hospital
Cheers,
Jacky
Edit:I'm taking a break until a week after I get out of hospital
Cheers,
Jacky
Sunday, May 8, 2011
The last few days before bmt
8 May 2011
Tomorrow I get admitted to the hospital. I'm terrified of the central line that they will put in my chest. I was told a local anesthetic would be used. Oh how I wanted a general anesthetic. I had a nightmare where I bled a lot after the central line was put in and the doctor told me to suck on the tube and swallow the blood. I woke up from that at 4.30am then went back to sleep.
Yesterday was awesome. During the day I got to play in the pre release for magic: the gathering. The majority of the games were close. If was great fun. In the evening was a dinner or I should say feast with my relatives and a few close friends. It was nice seeing everyone but I was too tired so I had to sleep at 9.30pm.
Friday was a BBQ at Lo's place and it turned into his early birthday which was awesome. I had a quarter of cup of champagne and it got me tipsy. Sigh* normally it takes 3 shots until I get tipsy oh well. Note to self: avoid any alcohol. When I got home my uncle also told me off for drinking. Even though it was only a bit the effects seem to be great.
Tomorrow I get admitted to the hospital. I'm terrified of the central line that they will put in my chest. I was told a local anesthetic would be used. Oh how I wanted a general anesthetic. I had a nightmare where I bled a lot after the central line was put in and the doctor told me to suck on the tube and swallow the blood. I woke up from that at 4.30am then went back to sleep.
Yesterday was awesome. During the day I got to play in the pre release for magic: the gathering. The majority of the games were close. If was great fun. In the evening was a dinner or I should say feast with my relatives and a few close friends. It was nice seeing everyone but I was too tired so I had to sleep at 9.30pm.
Friday was a BBQ at Lo's place and it turned into his early birthday which was awesome. I had a quarter of cup of champagne and it got me tipsy. Sigh* normally it takes 3 shots until I get tipsy oh well. Note to self: avoid any alcohol. When I got home my uncle also told me off for drinking. Even though it was only a bit the effects seem to be great.
Thursday, May 5, 2011
My recent thoughts
5 May 2011
Since today was relatively uninteresting to read about I will write something about my thoughts.
Why do people need a day to be nice to their mums or dads. There's 364 other days in the year to show affection to them. You do not need a day dedicated to them when any day can be special. I don't mean to offend anyone but it's what I think.
I found it hard to accept help from people. Going from being independent to being dependent was really hard for me. I keep looking for ways for people to do things for me as an extra task and not do it on purpose eg. For meals I'll have the extras just needing a bowl and cutlery.
Another thing that I have found hard is that I need to be more decisive (more selfish) because it seems that it is what i want.
This illness has taught me to be more patient as it takes a while to do some things on my own.
Since today was relatively uninteresting to read about I will write something about my thoughts.
Why do people need a day to be nice to their mums or dads. There's 364 other days in the year to show affection to them. You do not need a day dedicated to them when any day can be special. I don't mean to offend anyone but it's what I think.
I found it hard to accept help from people. Going from being independent to being dependent was really hard for me. I keep looking for ways for people to do things for me as an extra task and not do it on purpose eg. For meals I'll have the extras just needing a bowl and cutlery.
Another thing that I have found hard is that I need to be more decisive (more selfish) because it seems that it is what i want.
This illness has taught me to be more patient as it takes a while to do some things on my own.
Wednesday, May 4, 2011
A few days
I don't know why but I was feeling unhappy these last few days. But I am feeling more content now.
So on Monday I went to have a MRI scan of the brain. It's a non-invasive procedure and I had done lots of these. They wanted clearer pictures so I had to have a dye injection. It's fine as I'm used to needles. I would donate blood but I don't think my blood will get accepted. Back to the MRI, it's like being asleep you have to lie still and theres a blanket on you. So I tend to nap despite the loud noises which sounds like road works or construction works.
Tuesday, I had an appointment at braeside in the morning to see the speech therapist and a dietician. The ST gave me more words and phrases to practice and taught me a pointing technique for reading the phrases. She also told me after bmt I would another ST will take over.
The dietician was next and she wanted to get my weight. Turns out I gained 4.3% (48-46 = 2, 2/46) in these 2 recent months. After losing about 16% (55-46, 9/46) in the months prior (November - February). She decided that I needed some protein shakes and put me on 2 servings of it a day. She also said the shakes are not to replace meals.
Wednesday, I got up at 8:30am but I stayed in bed as my uncle went to get a parcel at the post office for me. I finally left my bed at around 11.30. I had some food made by my uncle then I took my meds.
My friends came over and we played 'dominion' before I had to go for dinner in the kitchen. so they decided to leave. At the time Wilson came over to help me with the zapper. You know the parcel, was the zapper. I had some dessert while my uncle insisted he have dinner. The zapper made me want to go release my bowels. Normally well not normally for healthy people but from the time I get the feeling to go and actually going is a few hours. I'm not going to say that the zapper works but it sure was interesting.
So on Monday I went to have a MRI scan of the brain. It's a non-invasive procedure and I had done lots of these. They wanted clearer pictures so I had to have a dye injection. It's fine as I'm used to needles. I would donate blood but I don't think my blood will get accepted. Back to the MRI, it's like being asleep you have to lie still and theres a blanket on you. So I tend to nap despite the loud noises which sounds like road works or construction works.
Tuesday, I had an appointment at braeside in the morning to see the speech therapist and a dietician. The ST gave me more words and phrases to practice and taught me a pointing technique for reading the phrases. She also told me after bmt I would another ST will take over.
The dietician was next and she wanted to get my weight. Turns out I gained 4.3% (48-46 = 2, 2/46) in these 2 recent months. After losing about 16% (55-46, 9/46) in the months prior (November - February). She decided that I needed some protein shakes and put me on 2 servings of it a day. She also said the shakes are not to replace meals.
Wednesday, I got up at 8:30am but I stayed in bed as my uncle went to get a parcel at the post office for me. I finally left my bed at around 11.30. I had some food made by my uncle then I took my meds.
My friends came over and we played 'dominion' before I had to go for dinner in the kitchen. so they decided to leave. At the time Wilson came over to help me with the zapper. You know the parcel, was the zapper. I had some dessert while my uncle insisted he have dinner. The zapper made me want to go release my bowels. Normally well not normally for healthy people but from the time I get the feeling to go and actually going is a few hours. I'm not going to say that the zapper works but it sure was interesting.
Monday, May 2, 2011
Church again
1 May 2011
Today was Sunday so that meant church for me. Almerick (Almo) took me in the morning. The sunday school was upstairs that led to me being worried but there was a chairlift so I got to use that but Almo went on it first because I was scared since he said he had not seen it being used. In sunday school they voted for the next text, as I wasn't officially part of the church group, I felt I shouldn't vote on the text.
Then it was downstairs for lunch at the church as they provide it. Almo went to get it for me. I had not been to his church for a month, people introduced themselves and talked to me and asked what my impression of the church was. I feel the church has a welcoming feel to it, everyone seems so nice to the newcomers. They (Almo, Gillian, Angela, Gideon etc) had some washing and drying to do as it was the first service of the month there was Communion where Baptised people drink red water (wine) and ate bread like the last supper. After church Almo was going to come over to hang out.
I got home at about 3pm but Almo wanted to finish some work so he would go to Gillian's first and then to my place after dinner. I was pretty tired so I could sleep for a few hours I volunteered sleeping in Almo's car but he wanted to take me home first so thats how I got home at 3pm.
I was tired so I napped and told my uncle to wake me up for dinner.
When he came over we got to some Winston drafting in magic which he won 2-1, damn it, thinking about it I should've taken 1 from his myr rather than let him draw 2 from infiltration lense. Next we got to some mental magic, Almo is far better than me at it so after losing 3-0 I had enough.
this will prob ably be the last time that i can go to church for a year or so. I was told that after the bmt i will have to avoid large gatherings of people to avoid infection (magic joke; if i get 10 poison counters gg).
Sunday, May 1, 2011
Comp
30 April 2011
I woke up at the usual time but wanted to laze in bed. I got the urge to play some starcraft 2(sc2) so i needed the computer. I called my sister and told them to get my desktop ready to move. My family came over with the computer. I opened the tower case up to investigate a noise with the computer. I got too tired from that little task and I had to call some friends to help. Most of them were busy aka useless to me. Wei Qi and Doany were free so they came over to help.
When they got to working, they noticed the inside of the tower was dusty. So with my uncle they vacuumed it clean. My desktop was then put together as in all the cables and the peripherals. The Internet is connected via a long Ethernet cable. I wanted to use a wireless network card but this will do. The desktop was set up in the living room.
This is what the desktop looks like
When it was finally ready I got to play some sc2. I'm so bad at it as I haven't played in a month. Wei Qi had to go home after dinner but Doany got to stick around until later.
I woke up at the usual time but wanted to laze in bed. I got the urge to play some starcraft 2(sc2) so i needed the computer. I called my sister and told them to get my desktop ready to move. My family came over with the computer. I opened the tower case up to investigate a noise with the computer. I got too tired from that little task and I had to call some friends to help. Most of them were busy aka useless to me. Wei Qi and Doany were free so they came over to help.
When they got to working, they noticed the inside of the tower was dusty. So with my uncle they vacuumed it clean. My desktop was then put together as in all the cables and the peripherals. The Internet is connected via a long Ethernet cable. I wanted to use a wireless network card but this will do. The desktop was set up in the living room.
This is what the desktop looks like
When it was finally ready I got to play some sc2. I'm so bad at it as I haven't played in a month. Wei Qi had to go home after dinner but Doany got to stick around until later.
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