Monday, February 28, 2011


28 February 2011

The last day of the month. Today I went to Braeside hospital to do so,e rehabilitation. The appointment was at 12.30 I had to leave for it at about 12pm so I didn't eat lunch nor was I hungry since I had some breakfast before my medicines. I have chosen not to take the anti depressant meds as I had gone swimming but because of the minor scratch or patch on my leg it stings when I get water on it. I will have to take them tonight.

I arrived at the day hospital and directed to the waiting area where I met the organising doctor or the co coordinator for the day. We then went to another room where she asked some preliminary questions to better understand the situation.We then went back to the waiting area for the first doctor who would be the speech therapist. She came and got the medical records and me of course and we walked to another room.

The speech therapist was really nice actually they all were. Firstly some initial check up showed her that I had trouble pronouncing some words. She explained why I shouldn't have hard foods like peanuts and the like and suggested I avoid those foods as it could be dangerous for me if I were to choke on some foods and food ended up in my lungs. The other thing she said was that I should put less in my mouth when I eat and drink a lot slower to avoid any problems wjith the choking. After this we were back to the waiting area for the next doctor the physiotherapist. She came in and we were off to the centre's gym.

The physiotherapist brought us to the gym at the centre where It had lots of the equipment that the place had and the room was quiet spacious. The initial inspection was some exercises to determine the degree of my lack of co ordination. The “test” had a total of 56 points and through all the exercises I managed a score of 40. We had originally been in one area of the gym but we moved to the walking bars to do some of the test as it was dangerous if I had to do them where we were. Then she went to get the walking aides. There were two things that I wanted to try, crutches and a walking frame. I didn't like the walking stick as it often just gave me support on one side and I would need help on the other side. The crutches seemed to be a problem as I would mistime my legs and it as well as the want to move quicker. Then I tried the walking frame, it seemed to offer me the right mix of support and it gave me freedom to move at my speed so it was the perfect thing. Next the occupational therapist came in because we were running a bit late and got us for the other room where she worked.

The occupational therapist was in charge of the daily activities and handled a lot of the daily tasks that I had to do. She wanted to see how I got into bed and out of it, showering, toilet, brushing etc. We then went back to the gym where she asked me to demonstrate how I would go up and down the stairs as there was a staircase in the corner of the gym. The next step was going to another area of the gym and she explained some things I should do around the house rather than just give me some exercises that I had to do. There were two things that I will do and I have done one of them already:
  1. dishes after dinner or even go for a walk
  2. making/getting my own breakfast
yes these are things that I should do on my own anyway but my parents were too nice to me in the past and as I was growing up.

Anyway tomorrow I have to go to centrelink in the morning as I am ineligible for a study allowance anymore and I have to go in person for an assessment to see if I can get some sort of medical pension or something. I wanted to type more about today but I didn't want the blog entry to be really long so I kept it to mainly just the rehab I did today from 12.30pm-3.30pm. Another thing is they let me borrow the walking frame and encouraged to use it, i would return it at the next appointment.

Sunday, February 27, 2011

church again

27 February 2011

there was nothing planned for Saturday so I stayed at home. I tried to play some DotA on sat, but failed somewhat miserably, I kept losing control of my hero and struggled to scroll on the screen correctly and mistiming of spells on the hero so sad that I had to work out the game wasn't for me.

Another thing I did was play some pokerstars and because I got impatient going all in on A 10 suited I lost the last remaining funds in the account so that's that, no more poker. In the end Saturday proved to me that I can't play dota or poker and thus I should just quit them.

I forgot to mention the button thing when I had dinner on friday so heres an exert as told by Seney:
noticed one of Henry’s shirt buttons undone and everyone actually noticed it too. Almerick wasn’t too sure if it was on purpose so he didn’t say anything. As dinner progressed, the unbuttoning process continued to two buttons undone. Okay… at this rate I looked at Almerick and he was laughing and then I lost it and laughed too. Then Gillian was also laughing. I was doing so well at keeping a straight face earlier! (Apart from smiling at my food a few times). Jess told Henry about it and while he was buttoning up, Anna kept trying to undo them again saying “it looks nice!”.  LOL

On sunday Alermick took me to church however we didn't arrive in time for the sermon or morning service, not to worry as I would've gotten bored or yawned during it. I slept at about 2am on saturday nightr and got woken up because I heard my ringtone on my iPhone in my dream and then I woke up to check on it in real life, sigh* what was I thinking? Who would call at that time anyway (please don't c all me to prove me wrong) . I looked at the phone time it was 3.15am I think it took until 4am for me to get to sleep again. Anyway we arrived in time for the Sunday school but it wasn't to start for 30 minutes so I got to playing some mtg with Robert (aka the jund kid) When we had class I went with Almerick to his class and Robert was in the same one too. Almerick toold mew tthat after church we would go to Gillian's place and play saome borad games and watcch Toy Story 3. I haven't seen it yet. After they did the class work we had 30 minues or so until lunch s what did we do? We played more magic. Then we went for lunch downstairs in the chruch, there Almerick got the lunch and while we were eating he invited Angela aswell to go and hang out at Gillian's to watch Toy Story 3. After lunch we headed upstairs again to play some more magic and I made a deal with Robert about what we were playing for. We only managed 2 games but he won them so as agreed I would donate some money to the church its ok I was going to do it anyway.

We then left for Gillian's place. Almerick suggested I call Seney and ask her if she would like to come, She was at Burwood at the time and Almerick said we can pick her up later from the nearby train station to Gillian's place. We played some more magic while we waited for Seney at Gillian's place while Gillian took a nap. After we got Seney we played some carcossonme with the 4 of us this tine. I ended up winning-by 1 point, yay for me, though if I had lost by 1 point I would've been mad since I did forgo getting 4 points for a road or something earlier in the game. Angela came soon after and then Almerick had to go across the road to rent Toy Story 3. We ended up watching it upstairs as Gillian's parents were hosting people from the church and it would get noisy downstairs. We watched the movie but midway through we got called for dinner so we had to put the movie on pause while we went to eat.
*spoiler alert* I really thought the toys were going to get incinerated at the rubbish tup. The ending got me abit teary eyed when Andy talked about Woody as he was giving it away. If I were to rate the movie it would be an instant 5/5 definitely worth watching.
Almerick drove Seney and I home as it was getting late and he had an early start for university. Dear me uni starts tomorrow though I did defer the semester so its quiet ok for me to sleep whenever as I could easily nap it off. Like my other post I have made up my mind that I will defer this semester and most likely withdraw from the degree next semester.

As for tomorrow, (Monday 28.2.2011) I will go to Braeside hospital to do some rehabilitation with “the team” of doctors. My condition is probably worse now today every time that i wanted to walk unaided by Almerick i said "i got this" and next thing you know i would stumble *sigh

Saturday, February 26, 2011

A taste of shanghai

25 February 2011

Alright I had a feeling that the lunch BBQ would not be going ahead tomorrow (26.2.2011) due to not enough people showing an interest in it. So I called Henry and asked if he wanted to go to dinner tonight instead.i felt like eating dumplings and 'a taste of shanghai' was a good place and i had been there before.

Until around 5pm I napped, played some casual mtgo games, youtubed, faebooked and maned abit. I was on my computer upstairs when I got up to go downstairs I stumbled a bit in my room and fell to the ground, I didn't bleed or break anything maybe my spirits but as for my body I was fine. I got up again right after so it was nothing major.

Dinner was awesome, the place was good and we had lots of laughs. When we, the 10 of us, got to the restaurant we had to go upstairs to have a table for 10 which was fine , it surprised me that there was an upstairs to the place. We placed our order with the waitress and she then read our orders back to us, it seemed rather long, when she was done we looked at the receipt and I was “just” 13 dishes During the dinner some people made comments about how they zoomed in on the plates in the menu because the dishes that came were smaller than we thought compared to when we ordered it from the menu. Next came dessert which was rather nice normally i'm too full from the dinner to eat dessert too so we again had to get the menu. I knew what to get since I tried it the other time and it was so nice to me. We ended up with 3 x red herbal jelly, a bubble tea, a ;passion fruit tea and another dessert which I forgot the name of. It was a ka chang or something. They agreed the desserts were larger than picutred but regardless the dessert that I ordered (red herbal jelly) was nice or so they told me. After dinner we had to get the bill and it was way less than I had imagined for the 10 of us with desserts too, they didn't want me to treat them to the dinner and each person was willing to pay their share. When we left the place I was walking down the sitars using the rails to help me get my balance. Seney walked ahead of me so if I did fall she could help me brace the fall, I don't think it was a good idea for her to cushion me if I did slip. Almerick stepped in front incase I did fall instead of Seney, he made the joke that if I fell on him he would then fall on Seney. This was bad since I was laughing while on the stairs. Don't worry I will not let myself move and laugh.

After we left the place some people needed to use the bathroom so a few of the people went to the bathrooms in the mall while Ricky had to go to his car to get the parking permit and Henry went to get his car to move it around so I wouldn't have to walk so far.

When we were done Lo Tech wanted to go out for drinks so I got let off at a friends place instead of at home. He was heading off tomorrow back to Orange where he studies so he didn't go the the dinner rather he would have dinner at home with his family. Sadly, Henry and Anna couldn't join us as they had to get to work tomorrow morning/ Anyway we went to a localish place and the 5 of us, went to a pub (me, Seney, Lo Tech, Wei Qi and An). At the pub we had some drinks (non alcoholic for me of course) and some wedges and we talked a bit. It was awesome too getting to hang out with them.

So overall the night for me was pretty awesome.

The next thing for me is to meet the team and do some rehabilitation exercises ar Braeside on Monday (28.2.2011) so hopefully they can help teach me some skills for everyday living.

Friday, February 25, 2011

farewell dinner

24 February 2011

I'm writing this today as I was worn out after the dinner and I just went home and went to bed. For those that are new to the blog I think you should read the first post “the truth”. I had no idea these blog entries were so long as I type them in open office writer and then copy + paste it. Last night I went to the blog on my iPhone to find the post as a friend didn't know about me (I haven't seen him in years) and rather than tell him I thought it better if he read it.

Lo Tech planned a dinner this was his farewell dinner before he had to head to Orange for his university as it was starting up again next week. Dinner last night was a good experience, I got to talk to some people about various things. Dinner itself was good, I got a T-bone steak but I needed Seney to help me cut it off the bone as I couldn't do it myself. I dropped the knife while I attempted it earlier so I asked her to cut it off the bone for me although she asked if she needed to cut it up I insisted that I can do it myself as long as it was off the bone, maybe next time I should order a steak without a bone.

I have deferred university for the next semester and I will most likely withdraw from the degree as I will not be able to the exams. Yes I know i'll probably need a scribe for it but I don't like dictating and I like to write on my own. If they let me type it up I don't think I can type as fast as I write.

The next step is another consultation with the cancer centre (they will be responsible for the surgery). I have decided to do what they recommend so based on the last meeting with them its either to do the bone marrow transplant or not to do it. I originally thought the procedure was simple but after the doctors explained it the procedure seemed more complex. The surgery carries a risk which the doctors had to reveal. If anything goes wrong they don't want to be liable for not telling me the risks.

As for tomorrow (26.2.2011) there is a BBQ at a park planned but it might not go ahead since there's not enough people.Either way I want to go to another dinner tomorrow night if at all possible.

Wednesday, February 23, 2011


23 February 2011

I wanted to update my blog each day but apparently my life is boring when I stay at home. So i'll update it when I go out typically towards the end of the week.

I'm glad that this disease decided to show symptoms as I'm an adult and my friends are too. I would not be able to do some of the things if this was 5 years ago and I wouldn't have met some people. If I was younger I would not be able to blog and I would have to rely on my parents to drive me around. So I am grateful that my younger self was unaffected by the symptoms now.

Earlier today I went to the RTA good thing Lo Tech could take me. My condition has probably gotten worse, I'm often getting tired from walking short distances. I had to go to the RTA to get a disability parking permit and my proof of age card. The ability parking permit is called a mobility parking scheme (MPS) and comprises of two things, a card and the holder. I wanted additional holders for the cars that would drive me but the attendant said they were only allowed one per card. Which means I’ll need to bring the holder each time. The 2nd part of the MPS is a card much like a license which needs to be placed in the holder. I needed a form of ID so a proof of age or NSW photo ID was something else that I needed from the RTA. In the end the MPS cost $35 and the ID cost $25 and they would expire at the same time in 5 years. Lo Tech helps me out a lot I’m sure it would be this way had I not gotten the symptoms though if I hadn't then there would be no real need to go to the RTA.

Tomorrow (thursday 24.2.2010) is a planned dinner thing and drinks later I guess no alcohol for me.

Sunday, February 20, 2011

the weekends

February 19 & 20 2011
sorry I got tired last night and a bit lazy so there wasn't a blog post.


On Saturday 19, February 2011 I went swimming despite not wanting to go for the past few days. I found it quite good and it was quite the workout for me (yes I'm terribly unfit). It was a shallow pool being about 1m in the shallow end and 1.4m in the deep end so I could easily just stand up in the water and keep my head above the water. I did 4 laps of the pool which wasn't that big about 25m in length or 20m I'm not sure, when I did the 4 laps I didn't use my legs at all so I breastroked only then I got tired so I walked the pool. So awesome to walk it without needing any assistance, I did stumble but being in water meant I didn't fall down. Then came the dreaded part of swimming, going to the change rooms, thank fully there was a disabled cubicle in the male change rooms so I went in there after telling my dad to put the toilet seat down so I could sit and put on my pants later on I'll leave the details of the exact changing out but it wasn't as big of a hassle as I had imagined or remembered it beimg. So when my mum suggested I go 4-5 times a week for 30 minutes a session I said “how about I go once for like 4 hours”.

So I went swimming in the afternoon and in the evening till night I went to Eliza's to play some board games. I didn't know how to play 'dominion' but I learnt the game later on and it was quite fun as I got familiar with the goal of the game, to get the most points and how the game ended Part of the fun was winning it but by a narrow margin of 1 point, oh man so glad I bought 6 points rather than the last card to end the game. Then we played a horse racing game which was also fun though I didn't even get close to the winner I had like $70 when he had $300 or so. It was getting late so Eliza drove me home.

I had borrowed some cards to make the standard deck I would be playing at club ashfield, this took me until about 2am as I didn't previously sort my cards.


I woke up at 7.30am despite setting my alarm for 8am, its just 30 minutes earlier this seems to happen a lot when I do want to go somewhere, I tend to wake up earlier than the time I set my alarm to. Compare this to uni, I am much more eager for this. So the standard event doesn't start until 1pm or after the lunch break. I got there at 10am when the extended PTQ was starting and Victor was going to be late for it but it didn't bother him, I wanted him to go on ahead when we got some parking but he didn' really care about the potential game loss and instead walked me to the venue. I had brought a notebook bag along which had my netbook and the deck I was going to play in the standard event. I played some magic online using my iPhone's tethering of the Internet to access it, I was going to play 1-2 drafts but the first draft the opponent was such a bad sport I attacked him for 8 damage, he was down ti 2 life, I used a triskelion counter to ping him and then he used re assembling skeletons trigger and gave priority to me, I was lagging so I couldn't do F2 in time to say “ok” and timed out in the round. Such a bad sport I was going to win and then he intentionally did that.

Many people that I knew asked me what was wrong but I didn't really explain it to them as that's why I started the blog. Getting tired of having to tell people and explaining the same things over and over again.

The standard event was 4 rounds and i'll try to do an event coverage
round 1- loss – this was against mono red. Where his deck was all in and dedicated to killing you in the first few turns
round 2 – win -mono green elves this was a tough game but a genesis wave that got mana leaked in game 1 was awesome as it turned out since I sided them out in the following games

round 3 – win – rug control – boy this was tough as I was relatively unfamiliar with a mirror match on mtgo but land screw didn't help him out at all and I won it from there.

round 4 – win – u/w polymorph – this was an interesting matchup and it was enjoyable, I don't know about for my opp but I had fun in this match. I won game 1 convincingly but lost in the 2nd game to a mass polymorph, I didn't need to see what he would morph into as I knew anything could've killed me\. Game 3 he got a mass polymorph off. The pervious turn I had seen a terrastodon at the top of his lirbrary and I left it there for him to draw,. He was on 3 life and I had an infero titan in play. sure enough he draw it then cast a mass polymorph, thankfully I had jace, tms in play when he resolved emrakul, iona and archon of redemption. He gained 24 life in that turn I drew for my turn it was a bolt. So I bounced the emrakul with the jace I had, dealt one damage to each of his 2 creatures and 1 to him when inferno titan attacked, he blcoked with iona and I bolted the archon. This was a go0od turn for me as I neutralised the threats.

so I ended up being 3-1 in the event and overall fnishing 3/9 behind first and second who had an intentional draw to finish in the top 2 spots. Had they played it out I could've got 2nd place. Oh well I had fun today.

For dinner I went to a dumpling restraint with Prads and Hyok in Ashfield the plce was called 'a taste of shanghai'. We had 6 dishes of dumplings and a serviong each of desserts. The dumplings there were tasty at one point I wanted to order 3x as much as we had but that changed after I had the dessert what we ordered was the right amount of food. The dinner was great I had an awesome time with you guys.

So after the dinner Hyok drove me home and dropped off Prads by his car. Durikng the car ride an important conversation of magic occurred. I gathered some more information and got to express my opinion. I only play magic for the social aspect of it. I enjoy hanging out and conversing with people more than actually being any good at the game itself. Thats why people asked me about my condition when they saw me stumbling and holding the walking stick.

When I got home. I began to write the blog entries whilst playing some poker, I won $9 so that brings the total to -$143 from what I had. Henry texted a group of people and said he wanted some ice cream or something, it was ok I had just gotten home so I decided it was fine to go out again since I wanted to hang out with him, jess and sam. I later found out that Seney was going so it was fine I called her and got a confirmation. This was awesome they wanted to go eat some congee. At Superdish (the nearest restaurant) they were closing so they didn;t allow more people in. The chili fish balls seemed to catch my eye so Henry asked if we could buy them and take it away. The fish balls were spicy, we ate them in the carpark. Then so fail woollies closes at 10pm and we wanted a drink damn it the time was 10.09pm. We then went to 7/11 and got Slurpees on the way to Sam's house to drop him off again. Thanks for taking me out for the night, no sarcasm at all. Even though it was for a bit I think I had as much fun as friday when we went to the pho dinner. I remembered this more because it just happened.

Well guys that was my weekend tomorrow well next week I will get my ID and do a few other things like go swimming again. Though they haven't set the time I look forward to next weekend and the BBQ outing that's being planned.

Saturday, February 19, 2011


18 February 2012

I won't talk much about today, I had said that I would go swimming but I'll do it tomorrow afternoon. I hate going swimming the changing after wards is a pain as well as getting out of the pool and gathering your things and going to the change rooms.

So I played more online poker, so annoyed I was up like $30 but then I made a loss of $160 so overall I'm making a loss. I guess I'm not good at this game at all =/. at this rate I won't be able to play much next week since I said I would not despo10 sit anything further. As for playing some mtgo I did a draft today and misbuilt the deck, oh dear I see a pattern here. I'm no good at these games, give it a week and I'll probably be sick of losing in them.

I had a diner gathering at Pho An it was at Bankstown guess what I ordered. Pho ! Who would have guessed that from the restaurant name. Anyway after the dinner we had some conversations and it led to Allen saying something that I had found really funny it almost brought me to tears from laughter it was about the Pokemon centre in Japan and then he said “bring a dead rat there and get nurse joy to revive it and say 'help it fainted'”. We then moved outside of the place to discuss  what to do next and I stumbled and fell down. It didn't hurt or anything and it didn't bruise me at all. How did I stumble? I'm trying to figure it out but it doesn't matter as it was no big deal.

As for Saturday, I will have to go swimming as I have been trying to avoid going to it. Also Eliza is taking me to play some board games with them. I could practice magic with Kenny as the PTQ is on the Sunday

Friday, February 18, 2011


!7 February 2011

Today I woke up at 9 despite sleeping at 4am I was determined not to nap at all.

Most of the day was spent playing magic online drafts which take 2-3 hrs each as I seem to always make the 2ND round only to lose it in an 8-4 draft. I want to be doing recorded drafts and games and will have much more detailed reports, let me know in the comments if this would interest you. I wanted to do the videos when I didn't know about the illness that I had so about 1 or 2 years ago when I started playing some mtg.

Now I don't want to seem ungrateful or greedy but I had used about 10% probably less on playing some online poker. Don't get me wrong gambling is bad. OK this what I'm planning to do, regardless this is the only amount I will ever spend on it. I treated it as buying a game. I am unable to really play any video games now at all as I am a likability to the team and it angers me when I make obvious errors when I play. Also I don't enjoy losing so I would refuse to play something I'm not good at. Back to the poker thing, I'm sorry if you feel betrayed in a way. I can't possibly find a job and start earning some money so this is my chance at it. The other thing is that without playing video games I did not have anything outside of magic online. Today I had lost $90 but I won $110 so there's start I net gained $20 terrible for a days work but it was fun and I don't intend to get suckered into it. I repeat myself that this is a one time deposit and I would not do it again, ever.

Why do I mention this when I could easily just not write about it, I feel you guys have the right to know where the generous donation is going.

Tomorrow I will go to the swimming pool to exercise as the doctor recommended which means that I will not have to take the anti depressants, yay!

Wednesday, February 16, 2011

I'm depressed?

16 February 2010

I didn't get a chance to look at my emails until this morning. Thanks Almerick and Henry for organising and collecting it. I'm possibly the hardest person to shop for because I tend to get everything that I need. When Seney wanted to get me a birthday present which was a wallet. She made me go into the store to have a look and I ended up buying it as I saw through her plan, instead she had to think long and hard for a new gift which was a calender that she made. I'm not sure what I'll do with it but I guess donating it to another charity is probably a bad idea as you guys would've done it yourselves. I like the numbers, it means something I guess which was priceless in a way, yes I know the amount is equivalent to the numbers. However what I'm trying to say is that it was thoughtful and meaningful.

I have a hard time explaining things and when I say something I think is funny I often laugh as I tell it. I'm thinking faster than I'm talking. Typing is the same thing, I think about things faster than I type them. So bear with me through it all. Haha bear. I typed 'bare' to Seney which she told me it was 'bear' so that is something that I won't forget.

Alright, so I started watching 1LOT again (I'm finished with ep 2) and an initial symptom for her was severe weight loss this also happened to me I went from like 55kg to 46kg which is a 20% drop off. I would've seen this and it would've alerted me to it before the unsteady walking developed.

Yesterday (15.2.2011) I went to the doctors like I mentioned in the previous post. However I didn't mention that he prescribed me with an anti-depressant. Now do I really need it? He also suggested I go and do some water based exercises to improve my outlook on the future. Its hard to be like before when I can't do the things I could. Showering scares me I take the shower then put on my underpants then dry off and go to my room to sit down and get dressed because I'm scared of falling. I'm not allowed to go out alone anymore.
How do I think positively? That is something I want to show others because I have accepted my fate.
I get emotional too easily, shedding tears when things often overwhelm me with emotions. Is this an inherent weakness? If you have met me I'm sure you think that I wear my heart on my sleeve. Go on close your eyes and think of how you would describe me.

Just now my i{Phone decided to not respond, I just locked it and it will not unlock and it was on at the time. So i'm not sure what to make of it.

Items can be replaced with newer items that are often better than the old. So it doesn't really bother me too much that the iPhone decided to not work. What bothers me is the fact I could miss calls and sms'.

Tuesday, February 15, 2011

doctor;s and mtgo

15 February 2011

I woke up at 8am this morning for the family doctor's which I agreed to go to today.

At the doctor's he said I should do some water based exercises to increase my co-ordinatiom we also asked him about applying for a disbabled permit and for centrelink so I can change from a study allowance to a disabilty pension. For these things we would need to go to the places and get the forms and then back to the doctor to fill his section on the form. That means I will be going to the doctor's next week aswell.

So we went to fairfield RTA to get the form, I wanted to get my proof of age card, there was an attendant there who said I would need to fill in a seperate form to the Ls permit that I previously applied for. So I can get my proof of age card and the disability parking permit sometime next week when I go to the RTA again.

I didn't go to cetrelink, hopefully I do not need to go as I don't like going and waiting in line.

After I got home from the RTA I asked for my netbook which was upstairs. When I got it I turned it on (obviously) then I played some mtgo, I won 2 of the 2-mans that I played. Then I went on to sell the boosters that I won to enter the daily standard event. I should have a brief event report below:

round 1 lost– this was against boros. This guy didn't want to lose to collar so he had manic vandal which was a good 2 for 1. Adventuring gear for the opponent was nasty for me.

Round 2 -won – now this person was playing mono green elves for me it meant no removal for cobras. People online tend to be ethugs, this was the 7+ guys that have taken rage when we played all unprovoked by me I might add, these people are so angry. I played jtms and he made a remark that any deck wit jtms thrown in can be good, the options on this planeswalker makes him good. In game 2 when he had the win he over extended by playing wolfbriar elemental kicked like 6 times. I had D-force in hand and 5 lands in play and 2 lands in hand, sigh I just needed 1 more turn to completely clear the board and then it would be 3 cards to 0. anyway the picture of a remark he made is below. He was not playing the “best” deck and I wasn't playing tbe “worst” deck it was a regulr RUG deck.
 He also said i was being ani his deck which is not true as RUG tends to prey on creature based decks

Round 3 – lost . This was against UB control I won game 1 so I needed another win which I thoght was looking good as I had the gaea's revenge in tbe sideboard.

round 4 – win. It didn't matter at this stage being 1-2 so the opponent didn't show up and he lost the round after 10 minutes.

So in the end I had a score of 2-2 which is fine. I'm just happy I didn't play against any valakut ramp decks. On mtgo the v ramp archetype is played so often as the deck is relatively a solitaire deck.

In the next few days or so I will go to the swimming pool then.

Monday, February 14, 2011

Valentine's Day

14 February 2011

Today was Valentine's Day, Happy Valentine's to all. I didn't go to the family doctors cause I was busy watching the webcast of magic pro tour paris yesterday. So I guess I'll go on Tuesday (15th).

My cousins got me something from the temple, I don't know what its called in English, but I'll just call it a charm, it has proven to be lucky today and I shall talk about it later on. Here's what it looks like:

On magic today, because I didnt go anywhere in the day time, I played 8 games of magic constructed with the RUG deck and I won 7 of them. The draft deck (below) should've won the draft event.

So after dinner, I went to Seney's place and we watched some movies. Despite it being only two minutes away, they insisted that someone aide me on the walk there. What fail, I fell asleep during the first movie, it was some Chinese drama movie and it was pretty boring.

Then I went home and played another game of MTGO and that makes it 8/9 wins, not bad.

As for tomorrow, I will definitely wake up to see my family doctor and on Sunday I will be going to PTQ.

MTGO and more MTGO

13 February 2011

Today I woke up at 11am damn it napped a bit yesterday so I fell asleep at 2 on the plus side I started watching “1 litre of tears” again, I shall refer to it as 1lot now. Today was relatively simple. I stayed at home all day..

On mtgo I played a total of 7 games of constructed with the RUG deck similar to that I was talking about in my other post (or refer to the list below).

3 Rootbound Crag
1 Halimar Depths
2 Copperline Gorge
3 Mountain
3 Misty Rainforest
3 Forest
4 Raging Ravine
4 Scalding Tarn
3 Island
lands 26

1 Avenger of Zendikar
2 Inferno Titan
3 Acidic Slime
1 Frost Titan
4 Lotus Cobra
creatures 11

2 Harrow
2 Explore
3 Preordain
1 Destructive Force
4 Mana Leak
4 Lightning Bolt
spells 19

1 Chandra Nalaar
2 Garruk Wildspeaker
4 Jace, the Mind Sculptor
planesalkers 7

3 Tunnel Ignus
3 Arc Trail
3 Cunning Sparkmage
1 Trinket Mage
1 Acidic Slime
3 Gaea's Revenge
1 Basilisk Collar

I lost to some random aggro deck that was playing dark tutelage. Control is so much easier now with Gaea's revenge. It was the right call to take out Obstinate Baloth in the side board. On another note I lost in a draft with an insane-ish deck to poison. I missed 3 points of damage which would've won me the round. II'm looking forward to MBS pre-releases online on the weekends and PTQ Nagoya on Sunday at club Ashfield.

I went to my uncle's house and stayed there for a few hours to do the same thing I do at home anyway, play magic online.

I was confronted with a math problem to do with interest that I couldn't solve. Feel free to try:

Microsoft excel was troubling to me, I forgot what how to use it.

Tomorrow will be more interesting I hope as I get to visit my family doctor and also its valenbtines day *wink wink* no.

Saturday, February 12, 2011


12 February 2011

I napped after dinner yesterday for around 5 hours, as a result of that I slept at 4am this morning man so bad being awake when everyone else in the house was asleep. I think regular sleep from now on will be nice.
So I awoke to my Uncle phoning my mum or something about reading this blog or knowing about the condition, I heard my mum cry and then while hearing some things it made me teary too. Ouch I'm so emotional at times.

So when I woke up I did the usual things of walk down the stairs such a workout for me, only kidding, though it has gotten harder to do as I have to hold onto the rails and go step by step and holding anything while I walk seems to unbalance me.

I wanted to go over to Seney's to spend some time with her but changed my mind as it was raining at the time and I didn't want any slips in the wet. So hopefully she is not too disappointed.

I mentioned the netbook in an earlier post. Wizards just released some viewing app of their webcast for the iPhone which kind of defeats the purpose of the netbook. I watched the player of the year battle *spoiler alert* brad nelson won 4-2. I watched the webcast from 7pm till it was over and decided I wanted to play some mtgo. Sad I lost the 2 games I played 1 when I was winning but ran out of time, oh well the first time it happened as I was using the touch pad, next time I should just connect a mouse.

In the future I do not want to go out when it is showering or the ground is wet as I could easily fall down in this type of whether. So if it rains tomorrow morning I would not want to go to the church and Almerick is still ill so it's ok. Tomorrow afternoon or night I originally had some dinner plans but I think I'll have to cancel them to go to my relatives place instead.

A friend, Victor, said that its ok the fall down as long as you get back up again, this seems cliche to me but I think it is true in that no matter the situation as long as you can remain normal or unchanged you should be alright.

Ok so I've given up on the no naming people thing on the blog so I can say that Almerick took me to see the green hornet and Lo Tech was the one that took me to see tangled.

There is so little to talk about that is noteworthy when I stay at home

Friday, February 11, 2011

braeside hospital

11 February 20101

today I got woken up at 7.45am since I had an appointment to see a doctor at Braeside hospital at 10am. So by the time i got out of bed and got ready it was time to go.

I had to ask Lo Tech to take me again today, this time Seney came along as well as my mum. Boy I knew the illness was serious but I didn't know it was as serious as this. The doctor examined me, asked about the symptoms etc. She then referred me to see 4 other specialists at the hospital in addition to seeing her again in two months time. The entire appointment was about an hour long which seemed like a lot to me as normally appointments with the doctor usually lasts like 30. Then I we went home and I got dropped off at home.

At home I played some mtgo against valakut I lost ut what I didn't expect was a mirror match. Speaking of magic the friends in PT Paris aren't doing well in the event which is sort of disappointing I'll watch the webcast of the player of the year 2010 battle and will cheer for Brad Nelson.

Typing on this netbook keyboard is hard so I kept this entry short next time i'm using the computer

Thursday, February 10, 2011

new netbook!

10 February 2010

I do he usual things in the morning, except my mum said they (my parents) were going to aldi to buy a netbook, I went to the site on the iPhone and saw the specifications for it, it was a good price for it. I had wanted a portable computer as I'm often tired of sitting up. The netbook is awesome =] it runs mtgo. I really like it besides the keyboard, its so small and my palms hit the trackpad when I type. Its only 1 day so maybe i'll get used to it.

Last night was the dinner thing and I scared my friends when I thought I could manage the few steps leading out to the carpark. I stumbled and fell into the bushes on the side so I didn't get hurt. The night was awesome though, thanks guys.

So I had got the netbook and was tinkering it to get it setup like the computer too bad there's no auto synchronise, or is there? Probably not worth it as it only took me three or so hours to download the programs and install them. The first thing was install firefox as I have grown used to this browser and the control that it gave me like it asks to run plug ins. I played around on the net book too long and soon it was 12.3pm which I had to get ready for m appointment.

I asked Lo Tech if he could take my mum and I to the hospital and that he was more than welcome to attend the appointment. We got to the cancer centre at the hospital, it was my first time going there, there was a long corridor and a nurse suggested I use a wheelchair and got it for me. At this point I was sad and cried because I wanted to walk it but they insisted I take the wheelchair. I was crying and I used the reason that I was scared to see the doctors.

When we got to the doctor's room we were greeted by two doctors one a professional in the field of bone marrow and the other a doctor specliasing in ALD. So we had a talk about the current situation. The future for me is undecided as the risk and reward of the bone marrow transplant is to be decided. I have an appointment at the cancer centre on 3/3/2011 so until then there are no immediate things that I can do and if bone marrow goes ahead it would be 1-2 weeks from then.

To me this seems awesome as I get another month or so to spend time doing things, the good games 3 man event sounds good and I can attend the PTQ which is extended and I have the deck for it =]

Wednesday, February 9, 2011

some achievements

9 February 2011

Well I'm writing this as some of you know I have a dinner tonight at the outback steakhouse which I don't think I'd need to blog about. I will however share some things I would like to accomplish in the next year or so

  1. attend the GGs 3 man team event on 12/3/2011
    this is of course if i'm not in the hospital at the time. I have the team in mind for it and will be organising the deck that I will play
  2. watch a friend in the top 8 of a premier event
    I know I probably can't dol it myself so the next best thing is for a friend to be in one this year
  3. Go to GP Brisbane
    This year its constructed standard and I really want to play in it since I went to GP Melbourne in 2009 for a sealed GP. The experience of a large event is good.
  4. go to nats
    As with the past 2 years I want to go to Australian nationals for mtg whether I can grind in is probably out of the question as I do not want to wait in line to register.
  5. Attend worlds
    I know this year worlds for mtg is in San Fran, well the states and it is unlikely tht I would go to it anyway however if it is close then I would go like in 2004 it was at fox studios
  6. play in regionals
    This one i'm sure that I can accomplish. I haven't looked at when its on but I will be going to it regardless (well there are some exceptions) I think I failed badly last year. It might sound cliché but the experience of it was pretty awesome.

Wow my goals are magic related so far and there are only a few people that can help me with those. Here are some other goals which aren't magic related:

  1. For all my friends to be healthy for the year or longer
  2. Purchase jace and chandra novels (I guess this one is magic related)
  3. Win a poker tournament
  4. Go on a hot air balloon trip
  5. Catch a fish (nah just kidding, I had my chance)
  6. Win a number in roulette

I should elaborate on the number in roulette, not being a gambling man I don't play it often. At crown casino in 2009 I had $20. I was on a table with 2 other guys they out all their money on aq number aqnd won it was the number 12. they won 36 to 1, I had wished I did that as I consider 12 to be a lucky number, what did I do instead? I put my money on a colour and won 2 to 1 good but not great.
there you have it a simple list of achievements though there will be more as I think of things I would like to do.

In the meantime, what have I been doing? Playing carcassonne on the iphone man this app cost $12.99 I think but its worth it not having to clean up the pieces afterward. The other thing I've been playing is monopoly on the iPhone which was a $2.99 app or something. Both of these games seem to keep me from being really bored as I tend to just lie in bed.

Tuesday, February 8, 2011


8 February 2011
for those that haven't read the first post I think you should view it

Since today is pretty much like yesterday i'll spare to dfiry entry instead I;ll elaborate more on my illness as best to my knowledge.
Ok so this is what I gather about it:

adrnoluekodyrtrop;hy ot X-linked AlD has 3 forms, a shildhood form,. Adult form and addison's only form. The childhoood form is the worst one as it leads to a vegatble state and eventual death in about years after the symptoms appear. The adult onset form which I hve it similar to the cbut the outcome will be the same, vegetable state and then death. The Addison's only form is the one where the patient just has adrenal insufficiency so they will need to take hormone replacements for their entire life. So I was told by a doctor that about 50% of cases are childhood form so I guess I passed it witho9ut knowing. The adult onsetfrom is about 40% of the time and lastly the addison's form is 10% of the time.

ALD is a disease which means the body doesn't produce a vital protein that aides in the breakdown of very long-chain fatty acids (VLCFAs) this leads to a build up of it in the brain and in particular the motor cortex. This build up causes the electrical signals in the nerves to be weakened or non conductive so its not a problem that I have with my muscles but the underlying drive that controls it. Right now its painless and I hope that it will remain painless.

I think I covered it in enough detail here for now you can akways ask me or reserch it online. Each case is different but generally it is the outcome. Its hard to say how long i'd have but my best guess is like 5 years though I feel the symptoms arew getting worse at an alarming rate of like 3 days so I will keep my blog updated.

I'd like to say a huge thanks to my friends who are helpuing me and see this as a chance to do all things I can do right now. I normally don't mention names but I will now as I want to name these people. First and foremost is Lo Tech I think I've known him sincce year 5 thats like 10 years or so and he looks out for me when we go anywhere in that right now he ensures I don't get hurt and tries to make it convenient for me. Victor, I first met you through another friend and we got along before I had the illness you helped me with my life and lots in terms of magic wqe oftren talked about it. Victorr noticed that I had been clumsy so I went to the doctors to get it checked out maybe he noticed it because of the time we spent Henry I know you want to help me deeply but you would not know how when you firswt heard of it you called Seney (my gf) and talked to her about it which was easiier I suppose, I soent a lot of time with henry aswell before the illness and the knowledge he has is awesome. Henry once said “i'm the kind of guy who helps someone and if I can't I get help for them from others”. Almerick is the niest guy I know and I hope you can marry Gillian soon. I met Almo at the store where I played magic, he works there part time now. Thinking about it i'm sorry that I didn't go to his 21st birthday I don;t remember what I had but it must've been important.. Wilso\n bought me some crystals when he first heard of it and i'd like him to know that while I do not believe in it theres no hwarm in using it and wearing the necklace of the crystals. Seney the unsung hero and only female so far, you have helped me a lot over the years and I have grown to take you for granted often times picking things over spending more time with you making you angrier in the process. The last person that I need to talk about is Jacqueline, she helped me with the blog and doesan't want to hear of me being at home wasting what time I have left and she wanted me to come up with a list of things I want to do we'll call it a bucket list. People should know that I am fine with staying at home I do not need to do things all the time.

Man that was a long section, there are mnany people who had an impact on my life so far and I coouldn't name them all or else this blog post will be so long.

What is the next step? A meeting with the bone marrow doctor on thursda 10/2/2011.

Monday, February 7, 2011


7 February 2011

today was relatively uneventful as I just stayed at home for the day which was fine by me. Today I woke up at around 10am but I didn't really get up until about 3pm napping and lazing around in bed watching youtube on the iPhone etc. anyway when I finally got up I went and did my usual morning routine. Oh I did eat a bit and drank my meds when I woke up at like 10am but it was in bed mydad brought food and the meds for me, how nice to have it in bed though I was careful not to drop anything as I was sleeping there later tonight.

So I woke up then when I had some time I got to the computer to have some conversations with friends over msn and a few over fb chat. I played some mtgo today as I didn't really want to gather the people for a team to play some dota. I played some mtgo using the rug control deck that I had been previously playing. I played 2 games one against quest white and the other against kuldotha red which I ended up losing as the match was based on how many removal spells I had. Turn 1 memnite + kuldotha, then turn 2 gonblin bushwhacker was 8 damage which is 40% of the starting life total.

I did manage however to ask some friends to a dinner on Wednesday evening, so sorry I couldn't invite everyone but evident from the auburn botanical gardens thing, the less people the better as I only get to talk to like 10% of the people that go in a large invite thing. I didn't really invite my girlfriend as I didn't really invite any girls so she would be the only girl, not that we are going to a guys place. Tomorrow will be likely similar to today, one word: plain, except I will call the restaurant up to make a reservation. In the future I guess on days like this I can blog about past days or just not write an entry.

Sunday, February 6, 2011


6 february 2011

I woke up at like 9am this morning to get ready for a friend to pick me up to go to his church. I'm not a religious person at all infact I have no religion though I do want to explore religious beliefs more before I really choose a religious view.

Yesterday (5/12/2011) I got to go fishing which was covered in my last blog entry, so I woke up ate and got ready to go he said he would be outside at 9.30 so I tried to get ready by then but I was running a bit late and called him to tell hm I would be 5 minutes so I got ready and then walked outside to wait for him but he was there already so I got in and off we went.

During the car ride to the church I expressed my desire and the worshiping fear I had. Which was that I would be seen as only being a devotee while it was convenient for me or when I needed the help which was not true. I had wanted to go to a church sermon thing before I had any symptoms but never got around to actually go as I didn't want to really express my desires with my friends.

At the church sermon I got a little emotional which my friend said it was perfectly fine. Some of the words really got to me and then thinking about past events as well. The part that seemed to get to me was when the Reverend mentioned how Jesus was asked by officials for identification and that he didn't have any instead he would just invite the people to his house and see how he lived etc. The reason I got emotional was because he then said about i8ts easy to spend time and have dinner with someone rather than to spend x amount of time living with that person. In a way this really hit home as friends can show their help during outings and such but they will never know what I'm experiencing every moment of the day.

Another friend asked me what it was like or the future. I said “if you know you would lose functions of your legs tomorrow, wouldn't you want to make the most of today” sadly I never got the option to make the most of it.

After the service the friend that brought me to church helped me upstairs for the Sunday classses that they had every week. I met another friend there (lets call him Bt) and the friend that brought me to the church (lets call him Al) knew the person as well, we talked for a bit before we had to go to the specific classes.

I don't really think you guys would want to read about my Sunday school experience, after the class we headed downstairs and once again Al had to help me down as I am terribly scared of falling forwards down stairs and as such will hold onto the railings on the stairs. In the hall area there were people eating, turns out that church goers cook and eat the food donated to the church.

Anyway AL's girlfriend was there and we met up with her after the lunch. She and her older brother were at church cleaning some things used for the a church ceremonial thing. The ceremony is held on the first Sunday of each week as I was told by Al. I sat down unable to help with the cleaning or drying and watched and talked to the people cleaning. When it was done we went to Al's girlfriend's house to play some board games. I consider her a friend rather than just my friend's girlfriend at the moment anyway.

When we got to her place her mum noticed that I had to use a walking stick and asked about me but I couldn't really explain it in Cantonese but I told the friend that her mum could read my blog if she could read English and her brother too. This was when I thought to myself that I had written the blog to originally avoid such embarrassing moments for whoever asked me and for me having to come up with an explanation. When I sit down I look like any other person but when I have to be mobile I am quite restricted. Maybe the friend can use Google translator for her mum . I know she felt bad for me in that situation though she should not be as I don't blame people for wanting to find out more. At her place we played some boardgames which Al brought along, We played two games they were called carcassonme and ticket to ride.
He explained how to play carcassonme and then had to go and pick up another friend to play the board games, Leaving me and her to play it as he would be gone and his girlfriend didn't want to go. So we played carcossonme for a bit as he was gone, though we had some rules issue so we had to consult with the rules booklet. When he got back he had to explain it to the friend, which was when we found out the things we did earlier were illegal moves so that game we had earlier didn't count. So we played a game of Carcossonme turns out that you didn't need to accumulate points in the game and that the end game score when worked out could be worth a lot. The next game we played was ticket to ride which wasn't as complex as the first game we played though it wasn't as fun as I enjoyed the first game more.

A friend had text-ed me earlier about dinner and I called her about it at about 6.40pm to ask about it and possibly get a lift from Al's girlfriend's place instead of from my home. She said it was fine provided I call another friend to pick me up instead.

We had time so I played another match of 1v1 in carrcossonme with my friend Al while they were coming to pick me up. Nice I won the game when I had to leave but we didn't know the eventual outcome as the game was unfinished but I do like the strategies behind that game more. I got picked up by my friend and we went to dinner which was fine by me.

When my friend got to the place I got to express myself once more about the day to Al and his girlfriend about how much of a blast I had with them. I hope they could tell even if I didn't voice it out but I had so its ok. I want to hang out with them next Sunday if it is at all possible.

At the dinner we had some conversations and then we ate and headed back home. What a long day for me I had been out of the house from about 30 minutes after I had woken up to when I got to write this blog entry.As for tomorrow I would want to take it easy and then platy some mtgo. whew long posting but I didn't do the day justice i suppose,. I had such a wonderful time today thanks guys 

Saturday, February 5, 2011

fishing trip

5 February 2011

So I will see the bone marrow transplant doctor on 10.2.2010 and then I will go into the hospital sometime in the week starting 14.2.2010. Knowing about the fishing trip and the need to wake up early for it I slept at about 11pm and woke up at about 5.30am this morning. Today I went fishing with some friends which meant leaving our area at 6.30am to get to the Hawkesbury by 8.30am. So I got picked up at 6.20 and we (the 2 cars) met up before leaving for the Hawkesbury river area.

All in all the boat was hired for 8 of us and we picked up the bbq boat at the boat hire centre which a friend pre booked and had to leave a small deposit. I brought along the walking stick as the ground would be unstable. I didn't take the walking stick with me from the car.The wharf leading to the boat had no rail or guard and I was scared of falling into the water so I had to ask a friend to walk with me to the boat where I could hold onto his shoulder for some support whilst walking.

Once on the boat we had to take some time to get to the fishing spot, I got motion sick or bored and tired so I used my iPhone and listened to a podcast of Hamish and Andy while I closed my eyes and slumped back against the boat, resting a bit. So we got to the fishing spot and then we anchored the boat and began fishing. Everyone else caught a fish except me, oh well, I enjoyed having conversations more with my friends and would engage in conversations either 1 on 1 or a group conversation with 3-5 people.

At about 1pm we decided to move fishing spots so we had to take the anchor up in order to move however the anchor was stuck an we tried to go in all directions and pulling the anchor up as we moved so we were stuck and after 2 hours of trying to get unstuck we decided to give up and then continue to fish in the same area. I felt like I couldn't help and whether with this illness or not having only been with them to fish once before (which I caught nothing) it would've been more of a hinderence than help. So after 2 hrs and consulting with the boat hire place we agreed that we would each pay a little more in order to cut the anchor rope.

A friend caught 2 fish but they were too small so he had to let them go and if he caught a third one we would call him the “fish pedo” since he only likes the little fish xD. So when he managed to catch a third small fish he gained the nickname of “fish pedo”.

Today was rather hot so I drank like 4L of fluids on the boat and I applied some sunscreen before the trip and a few hours into the trip. Damn it was sunny I wish I had brought a hat or sunnies for the trip. The breeze was a welcomed relief whenever it happened.

The fishing trip was pretty awesome although tiring in a way and having to put up with the heat. When we were ready to leave we had to cut the anchor with a knife. I took some photos on my iphone whilst we headed back to the boat hire centre and the wharf.While taking the photos I stepped back from the side of the boat to make sure I wouldn't accidently drop my phone into the river. The trip back took about 45 minutes. I took the following pictures:

We had some food left over from the fishing trip so it was back to my friends house for a BBQ dinner which was originally meant for 15+ people, yes we had that much food remaining. So during the boat ride back to the wharf we began calling people to ask if they would like to come to a BBQ dinner.

At the dinner which a total of 8 people attended, we were left with 6 for the actual dinner as 2 people had to leave early and couldn't wait for the BBQ food. My girlfriend was slightly hungry so I suggested she eat a pie in the meantime as a snack but she said she didn't like pies. I was a little hungry too (it had been 5 hours or so since I ate) so I asked her to make a potato pie and she could eat the top part which was all potato and I would eat the rest of it. She agreed to it and went to heat the pie in the microwave she ate the top parts using a fork, I later said “what are you doing? You're eating the whole thing I lied about being slightly hungry”. I ended up eating the rest of the pie as I was actually a bit hungry.

I hope that I can see most of my friends soon though although I know that they are sometimes busy with other things.

During he dinner we had some interesting conversations about other food and we continued to talk after the dinner. We left at around 10pm and I got home at 10.15 and began writing the blog at like 10.30pm I also checked my emails and facebook and found the message about attending church group with the friend I went to watch “the green hornet” with yesterday. Looks like I have something to do tomorrow (Sunday 6.2.2011) =]

Friday, February 4, 2011

another movie and some mtgo

4 February 2010

today I woke up at about 8.30am, I was going out to watch a movie with a friend at Liverpool for the 1.30pm session which was about a 10 minute drive from my place so around if I got picked up at 1pm it would be fine.

Getting to Liverpool from my place took longer than usual as there was a car accident on the Hume highway so we got to Liverpool westfields at like 1.30 which meant getting into the cinema at 1.40pm or aboouts. The movie we saw was the green hornet and like the times before I didn't really care what the movie was but the movie was good. You should definitely go see it, the 3d effects were really good unlike in Avatar (which I also watched in 3d).

following the movie we had some lunch at the food court, I only had some fries and a dr\ink as I was not hungry at all. I got to talk to my friend more which was awesome to me. We then walked back top where we had parked and got lost in the shopping centre for a little bit since we didn't remember the exact path we took in a rush t the cinemas, we finally got to the correct exit and then we were confronted with 'up' or 'down'. Did we go up or travel down when we got there? Luckily for me he went said that he can find out first by going and I waited by a pillar. I forgot to tell him to call me when he got down to save the trip back.

So after the movie he came over and we played some mtgo, a draft that we failed and lost in the first round of the 8-4 oh well. Next I suggested we play some constructed with the rug list I was playing. The first 2 man was a mirror and we won it. The next match was harder as we faced valakut ramp, we lost the first through thinking in an aggressive mindset he suggested we take out the 4x mana leak the only counter we have in the deck, it was a good decision in the end. We lost that match although according to him we should've won and I was being too nice to the opponents by not thinking correctly eg. Playing cultivate when I had enough to bounce, replay and pay for mana leak for the acidic slime in play this was the 'mirror'. In the match against valakut it was even at 1-1 and in game 3 I was on the verge of winning when misread something. Jace, the mind sculptor fate seal or +2 ability “do you want to place the card at the bottom?” I clicked “no” when I should've clicked “yes” so I threw it away as the card in question won him the game. I think I read it as “do you want to put the card at top?” oh what a loss since I just gave the win away.

I have decided to go fishing tomorrow on the BBQ boat though it will be hot I think that I would enjoy the company of the people, tomorrow's post (5/2/2011) might be long as I do want to write about it in detail I suppose. My friend is working tomorrow so he is not available for the fishing trip and he said that it was not his thing anyway if he was free.

Thursday, February 3, 2011

movie and more

3 february 2011

Today a friend brought me to see tangled, the reppunzel movie, to be honest I didn't really care what we saw aslong as I had not seen it before. He got over to my place at 12 ish and the session time was at 12:30pm I was napping earlie from like 9am so when he called at 11.30am I got ready I was out the door by the time he got to my place, how timely .

anyway at the cinemas, at parramatta, we arrived at like 12:45pm so we got to miss the commercils and the first few mins of it, not a huge loss as it was not one of those movies where the start was important to the story. When we got to the theatres an usher helped me to my seat as walking down some steps unaided or witjout rails seems hard for me and she said she used to be a nurse. The movie itself was enjoyable, you guys should go see it though it was kind of times but it was inteended for kids . At one stage I moved my legs to straghten myself in seat and my right leg got numb, the feeling dissappered after like 5 minutes or less so I reallly took no notice of it.

Walking in the shopping centre I almost fell down the escalator, going up is not a problem though but down could be to be safe I shall take the lift down from now on. I did't really mention it, when I left my mum told me to bring the walking stick and said isten to me amd your uncle, don't fall down and hurt yourselfthough I feel the walking stick hinders me more when I walk. Also my mum told me to not walk as fast and take smaller steps, I like to take larger steps as it covers more distance quiicker. It made me feel emotional when I heard it and as such in the car and meeting my friend I was abit teary yes I get emotional so easily, if only I was stronger.

So after the movie we had some lunch, I had a kebaab meal which my friend helped me to buy. I ate some of the chips as he was getting a drink from Boost juice, the chips were good maybe even the best I have had. I didn't start on the kebsb till later on, I managed to eat half of it until the wrapping started to tear and my hands would get the sauce on it. I tear the wrapping as I eat a kebab rather than push the kebab up the wrapper, maybe I should push it up from now on. So I got half way through it when I asked my friend to go back to the store and ask for a fork and plate. I then ate the insides of it starting with the meat but it was so salty so I ate the salad with it (lettuce, tabouli, onions, tomato) he had to go throw it away for me when I was done with it. I had some coke cola with the kebab and afterwards I finished the rest of the can before we left. Already it is hard for me to balance whilst holding things making it harder to walk.

We left the shopping centre ay around 3:15pm, I then phoned my sister to ask what they wanted from McDonalds as we were going past one on the way back. I wanted a drink at \McDonalds and this caused him to use the buy one get one free voucher. The McDonald's didn't have froze n coke so we decided raspberry was fine then at the drive thru collection they didn't have frozen raspberry so we were given strawberrry thickshakes instead. When I got home I finished the milk shake whilst striking conversations on my computer over msn I turned on the airconditioning too.

After the computer I went to lie on my bed and got tired so I napped abit. When I woke up I was thirsty and dehydrated so I drank 600ml of water in one go I suppose. The next part can make people sick but I will spare the graphic details. I had an upset stomach and I wanted to figure out what it was that upset my stomach. After some thinking and consulting with my friend that went to the movies earlier that it was a lactose intolorent thing where I had a large amount of the milkshake. Established that I can take it in smaller amounts, I feel relieved in a way.

Needless to say I did not play mtgo today, as I was not at home. Many people seem to be concerned that I might be bored at home but obviously I am not so if I don't do anything i'm more than happy staying at home where I can read, play mtgo, youtube etc
I have started asking friends to view the blog well more of people that need to know about it, so if I ask and you have seen the blog be happy that I want you to know and view it. Also if I haven't asked you to view it I hope you are not offended as I did make the blog to spread the word.
Ok I have decided to update it at night time rather than the next morning as wakijng up time doesn't even matter as much, expect the posts to be at around this time.

chinese new year

2 february 2011

happy chinese new year =] “gung hei fat choi”

Morning guys I woke up at 8am today, sweatinA, it is so hot geez why is it like this here when other places are experiencing cold weather disasters.oh I don't sleep with the aircon on btw as I don't want to catch a cold from it Yesterday wasn't much of a family re union like I had thought in previous years. Must be because the other times my grandpa was around to gather everyone to the dinner nonetheless dinner was tasty I suppose. It was just me, my mum, my 2 sisters, my aunt, uncle and grandma for the dinner.

Ok so I left my plaace at 5.30pm or so we got picked up by my uncle amd I brought my walking stick, oh how I loathe using it since I don't know how to use it and trip over it at times. To me using the walking stick or cane is like admitting I can't walk alone. People around me are constantlty scared that I would fall and hurt myself, I do fear that but walkimg alone does mkake me feel happier in a way. Anyway back to the dinner, so today was so hot and my uncle's place didn't have the aircon, geez i'm spoilt since there is one in my room. To keep myself cool I resorted to using as little emergy which was to watch some sc2 commentaries on my iPhone. I looked at the 2 unit work my sister was doing and at this time she would know more about trig than I can recall though I do remember the derivitve of tan is cot. Ah we then had dinner at 6.30 or so. After eating I tried to keep cool further by eatintg some watermelon. I got tired at about 7.15 and then went to nap on my uncle's bed.

I don't know when but I woke up at like 8.45 my aunt and her shildren were over though for abit. I told the eldest cousin there about my blog and he told me that he read the previous note on facebook which was nice I suppose.

9.30pm was hometime for me so we got driven back home, the 4 of us. Upon leaving another Aunty's family came to visit but we were leaving so I only got to see my cousin for a few mins. Anyway I got home and to my computer and room at 9:45-10pm then I had a fb coonversation with my cousin that had to leave at 9pm and some friends about this blog and a few others about other things but this was over facebook.

At 11 or earlier I signed into msn and began writing this blog entry obviously the first paragraph was not written last night as I had no idea when I was going to wake up.hmm I don't really enjoy reading novels as much, so I don't thnk I will continue to do it.

Wednesday, February 2, 2011

late sleep

1 February 2010

I woke up at 11am which menat that I was late for my meds which I have to eat before hand. The reason I woke up late was because I slept at 5am man so bad even with the aircon I didn't manage to sleep ,
I was going to bed at midnight when my sister plugged in an iron and it caused the powerboard to overload, it remineded me of the simpsons when homer plugged in the santa and caused the entire town to black out (I tried to find the clip but oh well its this ep I have no idea why it happened as we only use 5 power outlets in the room from the board. We chnged the board and it was fine though the 30 mins was deathly hot in my room\. Oh sigh didn't realise how hot it was without the aircon. Though I couldn't really change it I was morethe brains in the operation where my dad was the muscle and did the physical task of plugging the board into the wall and then the appliances into the board. Glad we had a spare board though if we didn't I would gladly sacrifice the computer and router for the aircon as we only have 1 wall socket.
I also read some emils last night when I couldn't get to sleep. I replied to them when I saw them in my inbox. I won't name anyone but I did get an email about a fishing trip which I've decided not to attend.
I played some games of mtgo with the deck below and I won all of them yay thats 4/4, it costs about 2 tickets each time to win a booster worth 3.5 tix I think, I have no idea as I tend to keep the packs until I draft. This was until 4am I think, I spent the next hour or so watching naruto shippuden on youtube i'm up to ep 63 or the end of it.
Ok so I woke up at 11am and then I hopped on the comp to make some changes to my mtgo deck, which is rug, for those interested here's the list i'm running:
3 Rootbound Crag
1 Halimar Depths
2 Copperline Gorge
3 Mountain
3 Misty Rainforest
3 Forest
4 Raging Ravine
4 Scalding Tarn
3 Island
lands 26
1 Avenger of Zendikar
1 Inferno Titan
3 Acidic Slime
1 Frost Titan
1 Primeval Titan
4 Lotus Cobra
creatures 11

2 Cultivate
2 Explore
3 Preordain
1 Destructive Force
4 Mana Leak
4 Lightning Bolt
spells 19

1 Chandra Nalaar
2 Garruk Wildspeaker
4 Jace, the Mind Sculptor
planesalkers 7

3 Tunnel Ignus
3 Arc Trail
3 Cunning Sparkmage
1 Trinket Mage
1 Acidic Slime
3 Gaea's Revenge
1 Basilisk Collar

So all in all a midrange deck it tries to be the aggressor when it faces a full control deck and it likes to play control against more aggressive type decks. I'm not a very good player and it shoews as I tend to be about 50% in terms of win-losses. I would like to be decent at playing and have a win rate of about 80%. Whiich brings my next point, gp brisbane is constructed standard, wonder if the new sets will greatly impact this format, if not I want to be playing this later in the year if i'm allowed to go to it. Yes magic or mtg has played a huge part in my life thus far, it helped me meet some amazing people tnat I wouldn't otherwise have met. I haven't played in any major tournaments since the GGs 5k which I I went 6 wins 2 losses for a finish of 11/126.

oh I called the student centre earlier to defer for the autumn semester and they told me to do it online through submitting a leave of absence request which I foollowed through with. Hopefully all goes well and in spring I can resume my degree and graduate wthin 2 years which is what I have left for my course. Oh I didn't mention my degree its a bachelor of business and bachlor of science in IT (BBus/BSciIT) at the university of technology, sydney (UTS) I only really chose UTS due t its proximity to central station as I found out during Open days the other unis were a pain to get to, travel time to the other places was about 90 minutes one way. Though if I could magically do something else it would be Bachelor of engineering (major in electrical) as I do enjoy doing some math based work. In my degree I found statistics, economics and networking fundamentals all enjoyable as they involved some sort of math that I learnt in school though I only managed to be in extension 1 math.

I will leave it at that for now and post a new entry tomorrow morning as the day just begun and these are the things I have done when I woke up. Not sure if you guys prefer I write it at night when the day is over or the next morning as I recap the past day. Oh almost forgot today is chinese new years eve so I won't be home tonight/evening as there is a family re union dinner that I'm going to.

Tuesday, February 1, 2011

The truth

Hi friendi've decided to start the blog as i'm tired of telling people in person or individually the whole facebook thing doesn't work as it keeps refreshing and the actual note gets pushed down the news feed thing. I'll treat everyone as if they are hearing what I have to say for the first time Ok where to start, I guess the beginning will do
I was very unwell from the age of 6 where I would be hospitalised during the winter when I had the flu, this trend continued every year, winter would come I would get sick with vomitting and diarhhea so I couldn't actually get any nutrients the only thing was a saline drip. The third time I was hospitalised, when I was 9, rhey (the doctors) send me for a test and eventually diagnosed me with X-linked adrenoleukodystrophy meaning that it was inherited in the X chromosone. At the time it meant that I had to take a hormone replacements known as hydocortisone and a little bit of flurocortisone. Now these came in tablet form and I had not taken any tablets befpre nor did I know how to, for the next week or so they tried to crush the tablets into a powdered form and then introduce it to some food or drink, I just remember the bitter taste that it made things like orange juicel. In the end I learnt to take the tablets uncrushed with a teaspoon of honey which only lasted a week after that as I had learnt how to take tablets normally with the aide of the honey.
Fast forward a few years things were the same throughtout my teen life just that I knew I could never get the “have not been absent” from school as I had to go for MRI scans twice a year, followed by checkups with the neurologist 3 checkups with the endochronoligist and 2-3 checkups with the geneologist. I'm sure I got it wromg but I didn't think about the appointments instead just going to them when I was told by my mum.
The symptoms first showed themselves in november as I would be unsteady or even abit of a clutz it was humerous to me at times I suppose as I attributed the cases as being isolated cases. I have the adult onset form of X-linked ALD as far as what I researched online it has the same symptoms of the childhood X-linked ALD however the adult form is slower or so I have read. At the moment the initial symptoms are preseent for me, a loss of the fine motor controls which meant I had to forgo computer gaming as a hobby of mine and I was annoyed earlier today when the monitor on the computer was flickering I knew the possible cause but I just couldn't get to adressing the problem just a loose DVI cable on the back of the tower and the monitor.
The next sectiom is about my girlfriend.
Through high school I had an eye on her? I don't know what she makes of it xD. Anyway being a younger person in the grade, I could not get the courage to tell her and my parents didn't want any relationship until after the Higher School Certificate. We studied or revised for the exams in the local library and we walked back together as she just lived in the townhouse complex next to mine, oh the convenience. A friend joked that I could wake up early for a jog and she would leave in a few minutes for a walk.
Hmm I wonder if she would get angry if I mentioned this =] when I first confessed to her she said “are you serious” then ran home as wee just walked past her twnhouse complex
I walk her home when we went out with other people, as I lived so close I would tell friends that it was ok to drop us off together infront of her driiveway or whatever a few minutes walk to her place and then home. Though I was sort of shy towards her when my prents drove her us home and would watch her walk back from the car.
She does not allow me to think thoughts of “never” and “ever” about the future. I didn't know at the time that my illness would be so severe had I known I probably wouldn't have started this relationship. We have been togather for 38 months I hope i'm getting it right
I have had to rely on friends to help me more when we go on outtings. Let me say it now that I dislike it however a friend said “how would I feel if you hurt yourself and I could've prevented it” I just don't want to burden anyone or to trouble anyone.
I encourage you to watch “1 litre of tears” as that could help you understand some of this the youtube link is there is a movie made in 1992 called “Lorenzo's oil” which documents the life of a child with the child form of ALD.
What happens next? there is no cure for it but there is one way to slow the progression down and that is through bone marrow transplant but it will only work if it is done relatively early into the progression of the symptoms, i wonder if 2-3 months into it is early enough for me. The timing of it was unfortunate as it was during the christmas break and doctors are people too and deserve a break.
A brief account of what I do at home through the day, I play some magic the gathering online, youtube abit, strike conversations over msn, phone people, do some reading (currently reading harry potter, yes I am slow to the fad) and some rewatching of old tv shows and/or drama. Its what I do besides the usual eat, sleep, shower, brush teeth and toilet
I kept a diary for a week or so but if people are interested in my day or days then I can spend some time writing diary entires. There is so much more to recap about my life thus far that I can't just sit here for hours typing it out so I guess I can write about it in future diary entries.